I have named my tumor "Arnold"

General Blog
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Why did I name my tumor Arnold? Why not? I call him Arnold the wannabe Arthritis. Basically for the last 5 years my request from my primary doctor to see an Orthopedic doctor about my knee were denied and my complaints were dismissed as, you guessed it, Arthritis. It turns out that that diagnosis was total BS!!

I have six children ranging in ages from 11 to 1. Cancer is such a scary word to a 6 year old, especially Stage III Synovial Sarcoma. So we call it Arnold. It helps lighten the mood and whenever I start to have pain we just casually say that Arnold is throwing his usual fit.

So far my treatment includes Radiation (25 rounds) and surgery. It seems the surgery is going to be intense. I'm not going to have "just" a knee replacement I'm going to have a prosthetic knee completely grafted into my femur and tibia.... OUCH!!! The docs have also given me the "option" to do 6 rounds of Chemo, but given that the chances are relatively the same for Arnold's return I have declined the Chemo (for now).

So now you know why I have named my tumor "Arnold". At my last Radiation session I'm going to twist out of the hospital doing my "happy dance" all the way to my car!!!

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Sounds like Arnold did a lot of damage already. How big is the beast?

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Sure hope all goes well, hang in there.

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Ain't Dr's grand?. Thank goodness my wife is an OR Director at a Hospital. When my PC Dr wouldn't order further tests on my cancerous arm due to the fact he was "sure" it was a spider bite! ( I spent years in the Amazon and I know a spider bite when I get one!)

So, we had some surgeons order my MRI"S and CT tests instead of my stubborn Primary Dr. who was blinded by the obvious. My tumor grew from the size of a BB to a softball in 4.5 days, tumor was hard as a rock and after 25 rounds of RAD it shrunk to 5.7cm (not good!)

I completed my chemo 1 yr ago and I'm doing well. I have struggles, mostly from a handicapped dominant arm.

I too had Stage IIIB SS, doesn't get much worse when you factor in the size! I am doing well and pray your husband will as well!

Popeye81507

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Hope for the best. Arnold will be gone and you will enjoy your life without any pain. But dont skip any treatment as suggested by your surgeon.

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