2 yrs ago when I 1st found my tumor and stared my treatment I was told for the chemo part I would be taking Ifosfomide/Doxirubicin and Mesna. I live 250 miles from the Cancer Clinic that initially treated me with RAD and surgeries. “Chemo can be done anywhere” I was told, so I had my chemo done near my home and at a MUCH smaller facility. I NEVER felt comfortable with the Onc Dr I was seeing near my home but I was told a cocktail is a cocktail and you can have it done anywhere and I don’t need to “like” a Dr for him or her to be effective.
Well, I left that Onc Dr and had all my documents transferred and I read on the paperwork that the Onc Dr ordered the cocktail of IFOSFOMIDE-PERARUBICIN/MESNA. He replaced the Doxorubicin for the Perarubicin. Has ANYONE ever heard of this?
The orders were clear to run Ifo-Doxo with Mesna. Perarubicin is for breast cancers and such and not for SS is it?
CAN ANYONE HELP? PLEASE?
I’m having heart issues now. I feel worse now than I did 8 months ago and I finished my chemo 14 months ago!
I am free of ANY signs of Cancer and I am VERY grateful! Y’all hang in there & Fight!
Popeye
Correct spelling is “Pirirubicin”!