I started a blog for all those that are interested in my treatment. I will beat this cancer and so will all of you! My blog will have more details on my treatment. I tried chemo, I'm trying alternative medicine in Tijuana, Mexico, and the next step if I need to is surgery in Germany.
Great work, I blogged about it on the Ben's Friends Blog so others could see it!
http://blog.bensfriends.org/post/59742887899/lynda-vs-cancer
Thank you Ben! I am excited about sharing my story. The more I talk about it the better I feel and the more I learn about the various treatment options out there. I look forward to hearing from others with synovial sarcoma and helping anyone when I can with their treatment approach.
Scott Orn said:
Great work, I blogged about it on the Ben's Friends Blog so others could see it!
http://blog.bensfriends.org/post/59742887899/lynda-vs-cancer
Here is somebody else who tried a few alternatives:
I left a note on CancerWife's blog inviting her over. It's a really great blog.
Awesome! I am glad to be part of a community like this. I'm also trying LDN (Naltrexone) which I have not mentioned in my blog.
Hi
I have sister with stage 4 sarcoma ,she did start chemo but we also did something I have no Aida what it called in English . The doctor back home they told me she have maybe 2 -6 moth to live
I told them is ok just try chemo on here and we will si.
After 4 month on Chemo and arabic treatment she did the MRI and doctor said it gone 75 on the lung
And they said it miracle .i don’t thing is only chemo how did that ever the doctor ask here did you did anything else .
Amina can you find out what the other thing she did was?
Amina Ammi said:
Hi
I have sister with stage 4 sarcoma ,she did start chemo but we also did something I have no Aida what it called in English . The doctor back home they told me she have maybe 2 -6 moth to live
I told them is ok just try chemo on here and we will si.
After 4 month on Chemo and arabic treatment she did the MRI and doctor said it gone 75 on the lung
And they said it miracle .i don't thing is only chemo how did that ever the doctor ask here did you did anything else .
Yes I will look for the name
Lynda, how are you doing with this treatment?
I am doing good! I have had slight improvement in the last 2 CT scans and now my largest Met is 6mm. Overall, I can’t complain considering it could have grown or not responded at all.
How is your daughter doing? Right now I am at a point where I’m doing so many treatments that I don’t know which is actually working! Something is working though so I’ll keep them up! I’m glad to share everything I am doing and perhaps you would like to try them too.
Glad things are going well. My daughter has just started a trial with MORAB-004. We will not know how it is working for another 4 weeks. We continue to investigate other options. All the best.