I dont know if this is even a possibility but maybe someone on here can help me out....
As my husband has 3 tumors in his right leg, 1 in his right lung and 2 in his left. and no chemo seems to be working we were talking earlier and wondered if he got his right leg amputated (as this is the only way of removing the tumor that is behind his knee) would they then be able to operate on the lungs? if anyone out there has an answer to this please please share with me x
Hi Irish Shiela
Your husbands SS sounds like mine.
I did have my r leg amputated followed by 4 months of chemo.Was also discovered that I had 3 or 4 nodules on my lungs, but they werent worried about them because they were so small.
Good Luck with everything.
Let me know what's happening with you and your husband ok?
I had one nodule removed surgically and the other 2 radiated by cyberknife. Only had 4 cyberknife radiation treatments to eliminate 2 nodules. The 4th nodule was too small to do anythng with right now. Will watch it via ct scans.
Hello. in 2006 I found out I had the sarcoma behind my left knee. At that lime the oncologist surgeon at Massachusets General Hospital installed a titanium rod from mid calf to mid thigh. Three years later the sarcoma returned in the soft tissue behind the knee and they amputated it at mid thigh. Last year my local oncologist found some spots in the lungs, which have slowly grown in size. Right now we're waiting and watching it and eventually he will do a surgery to excise the cancer in the lungs. Depending on where you live there are cancer centers at large hospitals that could advise you. There have been some oncologists that have been able to remove the sarcoma without amputation I would see if you or your oncologist could contact some of them. I would not have anything to do with Cancer Treatment Centers that you see on TV. There has been an article on-line in the news about their selection, pricing and results. One woman had a blood infection and they charged #319,000 to treat it.
When a patient has a primary and lung metastases at presentation, it is standard practice not to operate. They usually will try a systemic approach (chemo) because it takes time to recover from surgery and inflammation factors may render the disease more aggressive. But your husband's case is particular. Chemo doesn't work. His leg is giving him hell. His health is only likely to get worse. Cure would require a miracle. The doctors should focus on how to improve his quality of life. Could an amputation serve this purpose? It is not without pain but would it be a worse pain? This is something to discuss with the doctors.
Hi my name is henanit. There is surgery for remove one lung, but maybe if your husband get a lung from someone and to remove the two lungs with the tumor and put the other lung in your husband body. I hope that your husband win this cancer and live a better life.
Sorry to hear about your husbands tumors. I had SS behind my right knee in the soft tissue, diagnosed in 2009, chemo then surgery 3years ago, then radiation. I have mets in my right lung that are slowly growing, no rush to have them removed. I’m sure you know there is not a lot of space behind the knee, it was extremely painful, but my surgery was very complicated involving vascular and nerve grafts. With meds I still have neuropathic chronic pain, but I have a great quality of life, and my leg. 4 months of PT as well. I did have other surgeons tell me that they would not have done the limb salvage or the nerve graft. I chose Dana Farber in Boston, among other reason, but mostly for the comprehensive team of oncologists and surgeons that worked together all the time. That team was not at my local cancer center, travel from Hartford to Boston was worth it. I would say the team of doctors and their recommendations helped the most. Good luck, take it easy, Dan
Thank you all so much for responding
Elodie... my husbands tumors in the lungs are NOT primary they are secondary, his primary was in his left leg 3 years ago to which he had surgery radiation and has never returned. my way of thinking is that if they had acted faster none of the tumors would be the size they are now.
Daniel... i am sorry to hear that you now have them in your lung has surgery ever been discussed with you to remove them, also we are living in ireland and needless to say we dont have as many doctors to offer a different opinion here i am sick of them jst saying no all the time its like our fight has got stronger and they are willing to give up :( . 15 months before we got married (may 2011) i was told to bring the wedding forward because they didnt think he would live that long but needless to say he was standing at the alter waiting for me on 2.08.2012 and he is still here. he has lost weight and his appetite isnt great but we wont give up on this and he will get better. i am thinking of sending him to america for help if nothing else we jst need to no where to go
Henanit... would he not have to go on a waiting list for the lung transplant and he could be waiting months to years
PcBoss... how did you feel at the time of amputation and how have you been since then do you need a stick to walk? sorry for being so personal but we need to look at every option although i would rather a husband with one leg then no husband at all.
Mary... when i read your story it was like i was reading about colins you always think you are the only one going through it but this site has opened my eyes in a way i never thought possible keep the fight going girl xx
Hi Daniel can you please give me the name of the doctor you were attending i have started to look in to going to america and want the name of a doctor i can contact many thanks steph