February 28th has been designated as Rare Disease Day and CNN is looking for
stories about patients with rare diseases. Anyone interested should email
CNN.
As copied from Smart Patients:
CNN is looking for stories about patients with rare diseases. Would you be
willing to share your story?
<http://ireport.cnn.com/topics/1076051>
http://ireport.cnn.com/topics/1076051
Rare Disease Day is coming up on February 28. It's a good time to seek
publicity for your rare problem through city and community newspapers, tv
and radio, even make a poster for your local grocery store. Suggest to your
child's teacher that they do a poster project or research a rare disease.
Tell people where to get information.
For more info, go to <http://www.rarediseaseday.org>
http://www.rarediseaseday.org