My husband will be starting treatment with this drug since chemo had no impact on treating his tumors. I'm looking for anyone that has participated in this clinical trial and knows anything about this treatment.
Thank you in advance!
Trabectedin is also called yondelis or ET -743. There was a discussion earlier on the subject and you can find some of the people who tried it here:
http://forum.synovialsarcomasurvivors.org/forum/topics/yondelis-for-synovial-sarcoma
I know of one lady who was stable for 5 1/2 years with this drug. She posted on the Sarcoma Alliance Discussion Board. Here is the link to her post:
http://sa.sarcomaalliance.org/viewtopic.php?f=8&t=1540Thank you Elodie for the response and information. As always, your wealth of information and support is amazing!
Hello.
My son had for two months trabectidin treatment but did not work and stopped. I remember that it had side effects and does not drop the hair.I wish you good luck.Sofia.