Update: We finished the high dose ifos the end of March. Mixed results two of the larger tumors grew, one stayed the same and some of the tiny ones you can no longer see. He did ok on treatment till the sixth round when he ended up in the hospital with a fever, had to get three units of blood (1st time).
After six weeks with no treatment all the big tumors ended up growing again. We thought about radiation but needed to get another treatment started since they were growing again. He started the Yondelis clinical trial here in San Antonio three weeks ago.
He went in for his second treatment on Wednesday but his white blood cell count was to low so we had to wait until today to try again. WBC count was good today so he got hooked up. About two or three hours after he is getting upper chest pains. Maybe heartburn? Just wondering if anyone else on yondelis has had that side effect?