Today my husband and I found out that he has little time left to live, the sarcoma in his abdomen is growing and bleeding and even if the blood clotting agents work, he has about two months left, if the drugs do not work, it could be sooner. Life as we have known it is ending.. now we must pray for strength to see out the coming days.
It has been two years since diagnosis and my husband has had a total of five different chemotherapies all to no avail, and we are now at the end of the road.
Is your husband followed by a palliative team? It should be the goal to make the end of his journey the most comfortable possible. Is his abdomen painful?
Hi Elodie - palliative care is being set up with a team which was already in place and visiting. Husband is currently in hospital following a tumour bleed and Hb levels dropping. His abdomen is painful but he is on good meds to cope with that. We hope to get him home at some time next week. Shock is setting in and my whole family is distraught and I am driving myself crazy trying to imagine how he feels.
Don't try to imagine how he feels. Just show your love and be there for him. It's the best good-bye gift.
Bristol, my sympathies. He sounds like a strong person. Elodie's advice about showing love is excellent.
I will be praying for your husband, for you and for your loved ones. Look for strength in faith. HE is always there for us.
I am so sorry to hear your news. No doubt the both of you are devastated I will pray for a miracle for ye x
I am so sorry to hear this news. It must be devastating and I cannot think of anything to comfort you.
But will be thinking of you and your family. I hope somehow you can have something that you do to remember a happy time. Maybe if your husband is fit enough to go have a special meal somewhere or visit a place you both love.
wishing you peace and comfort
Shirley
I’m so sorry. I agree with Elodie and will add one thing - say everything and anything. I feel as though the time that my husband and I were given, particularly at the end, gave us the time to talk about and say everything. There is nothing that either of us left unsaid before we lost him on Feb. 3, and I am so thankful for this. Thoughts and prayers are with you and your family at this very difficult time.
I am so sorry to hear of your news. I myself went thru this 6 months ago today. Just love him and hug him. Take lots of pics and lots and lots of conversations. What your going thru is hard and will be hard after. Keep your faith strong and if you want to talk I am here for you. My email is ■■■■■■■■■■■■■■■■■. Your husband sounds very strong just as mine was. God Bless you all and I am thinking of you all.
I agree....Elodie said it best. If we look hard enough, there is a gift in knowing that death is imminent. I felt that way when my father was diagnosed with a terminal brain tumor and I feel that way now, as my husband battles metastatic synovial sarcoma. It changes our perspective and clarifies things. It doesn't take away your pain or your fear, but it provides you with opportunity. Bristol, please feel the love and support from those of us who understand. I will pray for peace and comfort for you and your family....xo Jeanne
I am so sorry to hear this, enjoy all the time that is left together..OX
Its been a little over 4 years since I lost my husband to lung cancer, and now that I’ve faced my own battles with synovial sarcoma I think I understand a little more what he went through. I can also say that it is so much harder to watch someone you love suffer than to suffer yourself, so don’t be hard on yourself. You’re doing the best you can.
A hospice is a wonderful place to receive palliative care. My husband found it much more peaceful and comfortable. Be there for him and know that in time, lots of time, things will get easier.
Hugs, Trina
I am so sorry to hear this my heart is breaking for you and your family I have tears in my eyes. Be strong and show him your love and know that you will see him again some day and he will be always there watching over you. I’m so sorry…
I pray to GOD to give you all strength to get thrugh this difficult phase of your life...
I am sad to hear this and pray to GOD almighty to give you strength to bear this pain...
There are no words that I could say that would truly comfort you at this time. I hope and pray that the memories and good times you have together fill the pain and sorrow in your heart. ((hugs))